Hi, my name is Carli Lyn! I’m 28 year old & live in St. Louis, MO with my boyfriend of 13 years & our 4 fur babies. I am wheelchair bound thanks to a rare bone disease called Fibrodysplasia Ossificans Progressiva. Being a fur mom is basically my entire personally.
Graci is my little lap dog who thinks she’s queen of the world (who knows, she might be). She was a high school graduation present & a product of very sad tweets to convince my parents that I needed a little dog after I lost my first service dog, Ralph in 2014. Goober is my sour patch kid- kinda sour kinda sweet.
Patience is my RETIRED (as of May 2025) service dog. She’s my best friend & partner in crime. She’s a 12 year old golden/lab cross. She is my second dog from Canine Companions for Independence. She’s sassy, loves ice cubes, & has the most expressive tail in the history of tails. I would absolutely be lost without her.
Oakley Andrew is Billy & I’s first (official) dog that we adopted together. He was born in December 2024, but were not use exactly what he is or how big he’ll get. He’s the sweetest boy who loves toys, cuddling, and Patience. He is 1000000% Billy’s dog- which I think he secretly planned.
Winston Archie Sullivan is our first little boy He’s our rescue kitty & first animal we adopted together as a couple. He’s just as official as his name sounds. He thinks he runs the house, loves all of my random medical equipment, shower water, & Billy.
I have the cutest little big toes you’ll ever see & a hobby of growing a second skeleton. No literally- I have or FOP. It’s a rare gentic condition that affects roughly one in two million people. You can learn more about how FOP has impacted my life here: Living with a Rare Disease. But you’ll learn more about it through my blog & following me on Instagram!
Learn more about me with these 15 Random & Quick Facts About Me:
- I love un-sweetened iced tea.
- I live off the same 3 dinners- chicken fingers, cheese pizza, & pasta.
- Bread is my main food group.
- I eat, sleep, & breathe Cardinals baseball.
- I would go to Target everyday (if I could drive myself).
- I thrive on routine
- I probably have OCD, I’m just not diagnosed.
- I would have my A/C at 68 year round if it was cost effective.
- I won’t leave my house without makeup on. Or my hair done.
- I don’t think jeans are uncomfy, and apparently that’s a hot take.
- I would wear flip-flops year round if St. Louis allowed.
- Sarcasm and dark humor are my preferred coping mechanisms.
- I cannot function without my nails done. Like literally can’t even pet my dogs, it’s a terrible habit that I have no intention of breaking.
- If I like it, I buy the s#*+ out of it- doesn’t matter if it’s clothes, snacks, makeup, cups, whatever.
- My face will tell you whatever I’m thinking.
I can’t wait to share my life journey with you
carlilyn.blog 