Whenever people ask me what I miss most in life, it isn’t being able to walk without assistance or all the obnoxious pain I’m in– it’s always been “I wish I could do my own hair” or “I wish I could go to Target on my own.” Now that probably seems extremely minute & unimportantContinue reading “Messy Buns & Target Runs”
Author Archives: carlilyn.blog
Here’s To 25!!
“I’m learning to cope. I’m figuring out little by little- with the help of an amazing support system. I’m learning to give myself a little more grace, learning some patience, & learning to trust my loved ones. It’s a process & it’s not pretty or easy, but that’s my life.”
2020 Wasn’t My Year
2020 was a tough year for me & it has little to do with the pandemic. It started with a big decision- I chose to stop the clinical trial I was on for FOP. It had nothing to do with the trial itself, but a personal choice. A choice that I went back and forthContinue reading “2020 Wasn’t My Year”
Earthquake
“There was pain, there was anger, but there was also hope, and there was determination.”
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