2021 in Review

I’m learning how to live with that. I have to accept this new reality, no matter how much I don’t want to. This is the situation I’m dealing with & as much as I hate it, it is what it is. I’m done with the “lasts”- it’s time I start living my new reality. 

I have: 

1 million problems, 

2 million things I’m dealing with

& 7 million things that need my attention. 

Medically, were looking for answers & relief. We’re looking for new medicines, new therapy’s, new equipment, new devices… ANYTHING.


Emotionally, I’m dealing with the permanency of all the new. It’s caused a lot of problems with my underlying anxiety & depression. I knew there would come a point in my life that I’d have to deal with mobility loss, I just never wanted to think about it (but I wasn’t completely unaware that this would someday happen). Nobody wants to face that at 25 my body is failing me- and I still have 75+ years left to live (haha, jk probably not that long). 

Physically, I’m trying to accept my new body. I’m not happy with how I look. I’m not happy with the new bone left behind. I’m not happy with the way my body is stuck (it’s seriously as uncomfortable as it looks). 

I’m healing the best I can, I just don’t handle change well. 

I promised myself I’d get my s#*+ together in 2021- and it didn’t quite happen. And ya know what? That’s okay. 

I’m not thriving, but I’m here & that’s good enough.  

2021 wasn’t all bad. This year I’ve….

  • Started my Red Aspen business 
    • And subsequently met my soulmate, my other half, & forever best friend. Love you longtime, Lynds.
  • Became “Aunt Carli”- my favortie “promotion” so far.  
  • Spoke on the iFOPa Advocacy Series about my medical journal that I live by
  • Became a Cat Mom & I’m obsessed with my boy. 
  • My mom got a new Canine Companions Puppy- Nicolette

2021 reassured me. I’m not there yet, but I’ll get there. 

2022, I’m ready for you…. I think, Maybe? 

Published by carlilyn.blog

Hi, my name is Carli Lyn. I'm a little sassy & a little smart-assy. I'm a 25 year old grandma who loves to sleep, drink tea, & watch TV. I'm an avid (okay, crazy-obsessed) St. Louis Cardinals baseball fan. I am a crazy obsessed dog mom to my two little girls- Patience & Graci. I'm the pickiest eater you'll ever meet. The only healthy habit I have is drinking 8+ cups of water a day. I love Target. I love planners & pens. I love organization and anything HGTV. Oh also, I have a rare genetic bone condition- Fibrodysplasia Ossificans Progressiva &I have really cute little big toes.

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