For you guys who don’t know me, I want to introduce myself.

I’m twenty-one years old. I’m a full-time (18 credit hour) college student. I’m studying Business Administration with a focus in Sports and Communications at Maryville University. I work two part time jobs, and run this blog. My life is focused around my family, boyfriend, dogs, and friends.

I’m a lover of all things monogrammed and flamingos. I have a [slight] Target addiction. I’m an avid Cardinals fan. I love all things social media. I have an obsession with dogs and unsweet tea. I love to read, sleep, and watch reality tv. My nails and toes always have to be done, and I can’t function unless there perfect. I won’t leave the house without my hair being done. I only listen to country music, with the occasional pop or Disney song thrown in.

I have Fibrodysplasia Ossificans Progressivarare, FOP, a rare bone disease, which affects only one in every two million people. Essentially I’m just really good at growing bone, and my body is growing a second skeleton.

I started this blog to inspire people with disabilities to be more than societies perception. I want to share my viewpoint on living with a debilitating disease and change the way society views me. I want to help find the strength in others, so together, we can change the world.

I know changing the world is a lot of work, but with your help, anything is possible.

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Hi, my name is Carli Lyn. I'm a little sassy & a little smart-assy. I'm a 25 year old grandma who loves to sleep, drink tea, & watch TV. I'm an avid (okay, crazy-obsessed) St. Louis Cardinals baseball fan. I am a crazy obsessed dog mom to my two little girls- Patience & Graci. I'm the pickiest eater you'll ever meet. The only healthy habit I have is drinking 8+ cups of water a day. I love Target. I love planners & pens. I love organization and anything HGTV. Oh also, I have a rare genetic bone condition- Fibrodysplasia Ossificans Progressiva &I have really cute little big toes.

3 thoughts on “Introduction

  1. Your acceptance of your plight in life has amazingly made you strong, positive and a stand out example of what someone, with any kind of disability, can do, with fierce dedication and commitment to positivity and the will to be strong and productive. You live life to its fullest and You are amazing Carli!


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